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"My family has Mytonic Dystrophy, Type I. It is a very rare, hereditary muscular disease that robs us of vital functions such as walking, speaking, breathing, moving our fingers, and even digesting. DM is one of the most complex diseases known. There is currently no cure, and treatment is limited."
— Crystal Mai Purdy

Tim Purdy is my amazing father with Myotonic Dystrophy, Type I. He was a runner, athlete, musician and teacher.

My family has Myotonic Dystrophy (DM), Type I. It is a very rare, hereditary muscular disease that robs us of vital functions such as walking, speaking, breathing, moving our fingers, and even digesting.

I am passionate in support of this research because I am hopeful that it may help future generations find peace and healing.

DM is ruthless and destructive. In addition to my father; my uncle, aunt and cousin all live with this debilitating demon.

My father was an athlete, a teacher and a musician.

I remember him going for "quick" 10 mile runs, after which I would "help" him do sit-ups by sitting on his feet.

I remember our entire living room being set up as a recording studio with microphones, music stands and speakers.

I remember my dad's melodious voice reverberate through the house as he played his guitar, or piano, and belted out some of our favorites by Elvis, John Denver or Chuck Berry.

I remember playing the piano while my dad strummed his guitar and sang with the residents of nursing homes during the holidays.

I also remember my dad's first heart attack. I remember the first time I noticed that he could no longer squeeze my hand like he used to. I remember when he set his guitar down for the final time, ultimately gifting it to one of his students who was learning how to play.  I remember the last race he ran, when he had to drop out in the first mile, and hearing him call my name to run to him and support him off the course.

I have not been tested for the disease, but I plan to keep pushing as long as my body will let me. I will keep fighting in honor of my dad, and so many others who do not have the choice.

DM is one of the most complex diseases known. There is currently no cure, and treatment is limited.

Today I ask for your support.

Although an effective treatment may be out of reach during my daddy's lifetime, others with this disease hold the hope for a cure as a light in their future.

 

What your Donation Supports

Myotonic Dystrophy research. More info coming soon!